Disability Justice Research Guide

Overview

This research guide is intended for a blended general and academic adult audience interested in understanding and advocating for disability justice, a framework meant to highlight the intersecting oppressions experienced by disabled people.

Disability justice was first conceptualized by the Disability Justice Collective to encompass the lived experiences of disabled people of color and trans/non-binary disabled people who were traditionally left out of disability activism and the disability rights movement.

This research guide is meant to capture the breadth of the disability justice movement, current movements and research informed by the framework via books, databases, and web resources. This guide includes non-academic sources, such as online publications, blogs, podcasts and videos, meant as an introduction to the topic for a user that may be unfamiliar with associated terms and concepts. For those more familiar with academic writing, research, or disability justice, this guide is meant to provide sources that offer a wide range of disciplinary perspectives with the opportunity for further exploration.

Header Image Credit: Moments Cooperative and Community Space members Samantha and D posing outside the bookstore entrance wearing black KN95 masks. They are leaning against a cart of books for sale. Photo by Brian Ringo, 2023.

related topics:  disability activism transformative justice

Web Resources

Critical Design Lab (project) - A design collaborative centered on disability culture and access. The website includes information on individual projects associated with the collaborative, blog posts, and podcast episodes. This site provides insight into how accessibility functions online and for individuals interested in design practice, computer science, and accessibility. The director of the collective is Aimi Hamraie, a designer, published author, and professor at Vanderbilt University. The subject matter is divided into past projects, active projects and blog posts. There is a site map and site menu for an overview and access to any topic of interest. The site is an archive for the collaborative,, so there are few references other than links to additional web pages for more project-specific information. This collaborative was discovered through Aimi Hamraie’s contributions to the Disability Visibility Project. Disability Archive Labs (project) - A project examining the relationship between archives/archival practices and disability/disabled people. The site houses information on current projects and content produced by the lab (interviews, publications, and presentations). This resource was included because it provides a historical and information science perspective on disability justice. For those unfamiliar with information studies, it can also highlight possible gaps in literature and research due to how disabled people are captured by history. The lab is directed by Gracen Brilmyer, a professor at McGill University investigating the erasure of disabled people in archives. The lab covers topics including but not limited to disability, ableism, archival access, and archival representation. This site can be utilized by a general audience, but the academic language may present a slight challenge. This source was discovered through a Google Search of “disability archives.” Disability Visibility Project (project) - An online community founded by Alice Wong dedicated to highlighting disability media and culture through a blog format with posts, oral histories, and art. The project focuses on the online disability communities and provides more “in-the-moment” news compared to journals or books due to the ease of publishing. The subject matter covered includes social justice (i.e. LGBTQ+ issues, political actions), chronic illness and lived experiences. The information is organized via a top header for individual projects and blog posts have associated categories and tags. The site can easily be searched via keywords and chronologically by month. The site is heavily biased toward qualitative “data” (i.e. oral histories, reflections, observations). Since the website is essentially a blog, there are no formal references rather outside sources are hyperlinked. Upon researching the Disability Visibility anthology, this website came to my knowledge. The Sick Times (online publication) - An online publication reporting on the Long Covid crisis, a mass disabling event. The content hosted on the site is primarily articles with links to their podcast and newsletter. This site chronicles an ongoing mass disabling event and provides insight inyo an issue and community that has been isolated. This source can be used to find information on Long Covid, COVID-19 research, and government policies regarding COVID-19. The publication was co-founded by Miles Griffis, an independent journalist with 10+ years of experience, and Betsy Ladyzhets, an independent science and health journalist. The website is divided by subject: arts and culture, health, international, science, and policy & and advocacy. Since the website is essentially a blog, there are no formal references rather outside sources are hyperlinked. The website will be critical of COVID misinformation and minimization. This resource was discovered through a conversation with organizers at my local masc bloc, @mascblocatl. Still Here (podcast) - A podcast developed in October 2024 by The Sick Times which recaps their weekly newsletter discussing Long Covid and COVID-19. It is hosted by the co-founders, Miles Griffis and Betsy Ladyzhets, and their podcast producer, James Salanga, a reporter and editor who co-founded the media criticism site, The Objective. This source is another way to engage with the media on The Sick Times website. There are timestamps, transcripts and links to mentions available on the The Sick Times website. This resource provides additional accessibility for the audience of the original online publication. Down to the Struts (podcast) - A podcast about disability, design, and intersectionality. The podcast consists of the creator, Qudsiya Naqui, a lawyer and disability activist, who interviews individuals involved with disability rights in fields including data analytics, entrepreneurship, environmentalism, etc. The resource was included because it broadens the conversation about “where” disability justice belongs and how it meshes with professions. The podcast was created in 2020 with new episodes every two weeks. There are transcripts available, but there are no citations/references for data mentioned in the majority of the episodes. The source was found through a Forbes article titled “8 Disability Podcasts That Are Well Worth a Listen” via a Google Search of “disability podcasts.” Who Belongs? with Imani Barbarin (clip) - A talk from the Othering and Belonging Conference hosted by the Othering and Belonging Institute at UC Berkley. The speaker, Imani Barbarin is a disability rights activist and discusses her experience growing up disabled, narratives surrounding disability and disability advocacy. This resource can be used as a primary source to understand the perspective and framework of disability rights activism. The information is presented via a YouTube video with an available transcript and subtitles to be skimmed for information of interest. The information is presented from a first-hand account, but references made can be searched externally and corroborated. This video was found via a YouTube Search for “Imani Barbarin. Crip Camp (documentary) - A documentary focusing on the experiences of disabled teenagers in the 1970s at Camp Jened who later became active in the United States disability rights movement. The documentary covers the origins of the camp, experiences of the campers and their activism efforts. This source provides context to the U.S. disability rights movement of the late 70s and how it cultivated the stage for the passage of the Americans with Disabilities Act (ADA) while highlighting several prominent disability rights activists. This resource was included because it includes first-hand accounts of disability rights activists and adds historical context to disability legislation in the U.S. The documentary was co-created in 2020 by Nicole Newnham, an award-winning director, and James LeBretchet, a filmmaker and disability rights activist, and produced by the Obama’s production company, Higher Ground. The narrative is largely told chronologically. intercut with interviews and soundbites from the campers. This source was found via a Google Search for “Crip Camp.”

Books

Disability Visibility: First-Person Stories from the Twenty-First Century
by Alice Wong
Disability Visibility is a collection of various texts documenting the lived experiences of disabled people. These texts include essays, poetry, transcriptions, and blog posts about what it means to exist as a disabled person to each author. This source provides a first-person perspective on justice and injustice and forces the audience to reckon with ideas and truths they may not personally encounter or have ever considered.

This book was published in 2020 by Vintage and edited by Alice Wong, a disability rights activist and founder of the Disability Visibility Project. It discusses disability, accessibility, culture, and activism. The resource is organized with interpretative titles of being, becoming, doing, and connecting which can make it difficult to find a specific source or entry. There is an introduction to contextualize the book and information about the contributors, but no references. Each entry is unique to its author and the story they want to tell. This book is in my library.

Care Work: Dreaming Disability Justice
by Leah Lakshmi Piepzna-Samarasinh
Care Work is a collection of essays by the same author detailing their thoughts on the disability justice movement which was, at the time, building momentum. The essays cover topics ranging from emotional labor, chronic pain/illness, accountability, and abuse. This relates to disability justice by its subject matter in a similar narrative tone as Disability Visibility. This source can provide an understanding of how theoretical disability justice frameworks are applied to the everyday lived experiences of one person.

This book was published in 2018 by Arsenal Pulp Press and written by Leah Lakshmi Piepzna-Samarasinha, a cultural/memory worker, writer, and activist on disability and the transformative justice movement. Due to the narrative style, there is little organization besides different essay titles, but there are resource and reference pages at the end of the book. The narrative style makes it an easy entrance point to ideas and topics. I found this book searching on Google for “books by disabled people AND disability justice./p>

Crip Kinship: The Disability Justice & Art Activism of Sins Invalid
by Shayda Kafai
Crip Kinship is a collection of essays and reflections on the work created out of Sins Invalid, a performance-based project dedicated to celebrating the work of disabled POC and gender minorities around the world. The essays reflect on the author’s hope for a more liberated future. This collection showcases the work of disability justice from a primarily creative perspective through the work invested and projects produced by Sins Invalid.

The book was published in 2021 by Arsenal Pulp Press and written by Shayda Kafai, a professor of Ethnic and Women’s Studies at CalPoly Pomona. The book reflects on artists with disabilities and political art. The information is organized by essay topic with in-text citations. This source was found via the Rebecca Crown Library searching for “disability justice” and books published between 2020-2024.

The Right to Maim: Debility, Capacity, Disability
by Jasbir K. Puar
The Right to Maim is a book that examines the “concept of debility—bodily injury and social exclusion brought on by economic and political factors” (publisher’s note) through a series of essays covering the violence policies enacted against Palestinians. This book directly ties disability justice to geopolitics providing the audience with an understanding of disabling as a tool used and promoted by governments and regimes to actively harm individuals.

The book was published in 2017 by Duke University Press and is written by Jasbir K. Puar, a professor of Women’s and Gender Studies at Rutgers University. The book is about the intersection of social theory and disability through state-supported policies and violence. It is organized into four sections that discuss trans community, capitalism, and the occupation of Palestine. There are notes, a bibliography, and an index to assist the reader’s interaction with the text. Based on the preview text, the audience is primarily academic with a basic understanding of social theory. A general reader may be able to read the text with slight difficulty or additional research/context. This resource was found through my local independent feminist bookstore, Charis Books. They have a booklist for disability/anti-ableism.

Reference

The Routledge Handbook of Disability Activism
Reference Book
The Routledge Handbook of Disability Activism is a handbook covering disability activism on a global scale, examining the policy goals of the movements, and future possibilities. The handbook relates to disability justice by engaging with activist work to enact change on a policy level across various institutions and governments. This resource was included to examine the tactics and effects used by activist movements to create tangible change in the world.

This handbook was published in 2019 by Taylor & Francis and edited by Maria Berghs, Tsitsi Chataika, Yahya El-Lahib, and Kudakwashe Dube. The first three editors are all professors within social/medical anthropology, social work, and education. Dube is the former CEO of Action on Disability and Development International, an organization working to support the global disability justice movement. The book is organized into broad sections moving through contextualizing disability rights, the current state of disability rights, social media and campus activism, international activism, and future challenges and opportunities. Each entry is organized with individual headings and references. There is also a list of contributors at the beginning and an index at the back. This book was found through the Rebecca Crown library database with the search terms “disability justice OR disability activism” and filtered for only books within 2016-2024.

Disability: A Reference Handbook (Contemporary World Issues)
Reference Book
This handbook focuses on disability rights in America by providing frameworks and primary evidence as it moves through the history, current landscape, and key players. This relates to disability justice by providing a lens into the United States disability rights movement and can give concrete entry points to the topic via individual issues, organizations, or individuals. The data and other reference works also potentially provide additional sources for an academic audience.

The handbook was published in 2019 by Bloomsbury Publishing USA and authored by Michael Rembis. Rembis is the director of disability studies at the University at Buffalo. The book is organized into background and history, current disability rights issues, different identities to view disability, important players, and resources and data. The resource organization is logical and provides a chronology, glossary, and index at the back. The sections are structured differently (chapter, article, tables), so there is no specific format for each entry. The handbook can serve general and academic audiences. This book was found through the Rebecca Crown library database with the search terms “disability justice OR disability activism” and filtered for only books within 2016-2024.

The International Journal of Disability and Social Justice
Journal
The International Journal of Disability and Social Justice is an interdisciplinary journal covering disability studies and efforts to address ableism, obstacles, and social injustices. This is a great source for articles reflecting global disability justice efforts to address related issues.

The journal was first released in 2021 by Pluto Journals and edited by Angharad E. Beckett, a professor at Leeds University and a sociologist with research focusing on oppression and resistance practices. The journal is published three times a year with the most recent edition published in September 2024. The articles are more technical, as it is intended for practitioners and academics who already have a level of subject matter expertise. This journal was found via a Google Search for “disability justice journals.”

Databases

SocINDEX with Full Text - This database is hosted through EBSCO that features full-text articles covering a broad spectrum of sociological studies. It can help in understanding the scope of research regarding disability justice and peer-reviewed articles on the application of and attitudes toward disability justice, disability studies, and disability activism.

There is a basic and advanced search and a refine results tab. The coverage for disability-related articles dates from 1895 to current. In advanced search, there is the option to select peer-reviewed and full text. The results include articles, reviews, magazines, conference papers, books, trade publications, and dissertations. Results can be sorted by relevance, data, source, and author. Users with an account to save results to folders for access at a later time. This database was found via Google searching for “disability justice libguide” and then searching Princeton’s Disability Justice LibGuide.

Social Science Premium Collection - This database is hosted by ProQuest covering the social sciences, including politics, public policy, sociology, social work, anthropology, linguistics, and education. This database can provide quantitative data about disability justice, disability activism, ableism, and accessibility.

The website auto-populates with the advanced search where the user can limited via keywords, full text and/or peer-reviewed, date, source type, document type, and language. The database includes artistic works, web resources, books, conference papers, dissertations, reference works, official publications, print media, reports, and speeches. The database results date from 1914 to the present, but results for disability justice date from 1975 to current. Results can be sorted by relevance or publication date with the option to exclude duplicate documents and include spelling and form variants. A user can create an account to save sources to a folder, but the text available can be emailed without setting up an account. This database was found via Rebecca Crown Library by searching “disability” and selecting database results.